Information portal on Hereditary Angioedema (HAE)

Printed from www.hae-network.info

This document was printed on 22.Nov.2008.

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Unis, nous sommes plus forts

Bienvenue sur ce portail européen d’information, de mise en relation et de coopération

Le réseau AOH a pour fonction de rassembler toutes les personnes touchées par la maladie rare qu’est l’angiœdème héréditaire (AOH). Ce réseau s’adresse aux patients, à leurs proches, aux médecins, aux scientifiques, au personnel soignant ainsi qu’au grand public.

Un dialogue permanent, entre patients, associations de patients, médecins et scientifiques a permis au réseau AOH de diffuser les connaissances relatives aux dernières découvertes scientifiques, diverses expériences individuelles ou cliniques, et options thérapeutiques existantes, dans le but de mieux cerner la maladie.

Objectifs du Réseau AOH

Etablir un réseau européen et centraliser les informations relatives à l’AOH :

  • Fournir, diffuser et promouvoir toute information disponible sur l’angiœdème héréditaire ;
  • Promouvoir la mise en place d’un réseau national et international entre les patients, leurs proches, le personnel soignant, les médecins et les scientifiques.
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