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Mobility is an important factor for people affected by HAE. However, as swelling can occur at any time, being able to contact the nearest centre quickly is very important, particularly when travelling. Therefore, this section contains, among other things, lists of the national HAE centres known to us and the many HAE centres in Europe with their most important contact details.
HAE Range menu
A network for patients and treatment providers
Easy access to important up-to-date-information about HAE
The HAE-Network aims to help as many people as possible associated with this rare disease as possible to get in contact and become involved with national patient groups and to gain further knowledge of HAE in order to improve the treatment available to patients. An international committee of experts advises and supports the HAE-Network on all scientific issues.
Patient organisations are probably the most important point of contact for patients and relatives. It is only thanks to their work that patients realise they are not alone in having this rare disease.
There are several companies developing or providing medical treatment options and we have provided links to their homepages in a special list. In addition we offer infomation about current clinical trials sourced from the open clinical trials database or the sponsors.
| Frequently inquired |
Author: Jerini AG
Source: HAE-Network Status: 3/08 |
